Monday, April 14, 2014

Sunshine and Soccer

Vitamin D... We need vitamin D and our family was able to soak it up this weekend! Saturday was super busy. It is amazing how our lives are dictated by a 5 year old's schedule. I volunteered at our church Saturday morning. When I came home, we checked out the neighborhood yard sale. Anabelle shopped our friends' stuff, and I inherited some of their goods. Anabelle was so sad they were selling some things, so Stephanie decided to give them to her. She is so proud of them. They don't really go with our decor, but oh well. :)

The kiddos' preschool held a spring fling on Saturday. They had bounce houses, games, and food. Anabelle and Jack really enjoyed themselves. One thing I have picked up on is the need for Easter Bunny costumes that aren't creepy enough for a scary movie. There has to be more legit costumes out there...

We came home after spring fling to change and load up for soccer. Poor Russ- everytime he tried to sleep, we had to load up to go somewhere else. I'll admit that I was skeptical about soccer. The last time Anabelle played she was great a practice but sat on the field and cried the whole time during the games. For her first game...she actually played! We were so proud. She did stop every minute and a half to grab ice from the cooler and put it on her face. At one point she dribbled the ball down the field in the wrong direction, but at least she showed good ball control:) At several points during the game, Jack decided to run on the field. I am pretty sure we spent more time entertaining him than we did watching soccer. I poured water on him to cool him down, and by the end, he looked like a mess.
After soccer, Jack crashed, but Anabelle and Russ held on strong. We were exhausted, but had a ton of fun.

The cat (Puddles) managed to get locked in the van for about an hour. I left the door open, and Josh came behind me a little while later and shut it. When we came out to go to the store, she shot out. Seriously could have been a disaster. She is crazy!! She tried to get in when we were heading to church, but Anabelle chased her out.

We finished Saturday with a concert from Anabelle. Tom and Steph came down, and Anabelle sang every song she knew. It was so funny, but we had to try to hide our laughing, because she was so serious.

Josh felt great this weekend. His eye is still bothering him a little in bright light, but sunglasses help that tremendously. We are still waiting on the appeal process for the gel infusions. Since it is being handled, I try not to worry about it. It is really out of our hands.

We will be attending a dinner for MS research and fundraising with our friends. David has been asked to be on the board of the Birmingham Chapter of the MS Society. We will be going in May. I am interested in what they have to say. Josh and I cracked up when David asked us to be their guests. I think the conversation went something like- hate to ask you to this, but well, it is for MS. It is really funny how some things can be a little awkward when it comes to talking about and dealing with someone's "illness."

Josh and I have also noticed that when talking to others about things that are going on with them, after talking about their problems they usually follow up with-" But why am I complaining? Look what you are going through." It kinda drives me crazy. EVERYONE has their own set of issues/problems/things they are dealing with, AND they are just as important and pressing as us dealing with MS. I always think it is kind of a low thing to pull the "MS card" on people when they are going through something. Everyone has their own battles to fight. One of our's is MS. It doesn't make their battle any more or any less.


I took some pictures this weekend. I have decided that if I get a serious, good picture... then great. If not, I will take the goofy pictures and just be fine with them:)

Ready for Soccer



He wanted me to take a picture of his sandwich (2 hamburger buns) and yes- he finished them all. Yuck!




Two peas in a pod.


Anabelle wants to be a nurse.

Taking care of Meredith




Hang Loose


Puddles- seriously crazy...



Friday, April 11, 2014

Marathon

I am about to leave school. I am so glad it is Friday and the weekend is here!

A sweet co-worker just stopped by my room to tell me that she and another co-worker are running the Chicago Marathon. They picked that particular marathon because the money raised goes to MS research!! Both of them have friends with MS and another teacher and I have spouses with MS. So... what an awesome way to show support!!

They will both be raising money over the next few months. I am already trying to think up some ideas to raise money for their run. Have any ideas??? :)

Thursday, April 10, 2014

Way back When

I don't have much to post today. We the nurses are still working through the appeals process for the gel. (So nice to have them help us.) Josh is in his busy season at work. He has a ton of food shows around the area and on the coast. He came home yesterday from Montgomery and really felt great. After being on his feet all day, he didn't experience any fatigue. His eye is about the same. Still hazy in the sun, but other than that, it is normal.

Anabelle is meeting the k-5 teachers at her school today. We will go next week to officially register her. She told Josh last night that she just wanted to take a day off from school today. We both laughed, because she sounded so serious. He is going to keep her with him today. They always end up doing fun things. I am actually a little jealous that I can't be a part of it.

Jack is busy. He is also developing his own sense of style. He is dedicated to screen printed minion shirts (Despicable Me) and a batman beanie hat. I swore I would never let my kids wear "tacky" shirts, but oh man- he loves them! Seeing him happy makes the tacky go away.

Russell is crawling. Well, kinda. For every crawl forward, he takes 3 crawls back. I know it is frustrating... He literally will pitch a fit when he is trying to get something in front of him. He is 8 months and wearing 18-24 month clothes. He is definitely a bruiser. Anabelle said last night that she wished he could always be a baby. I really wanted to tell her I wished the same thing about her...

Since it is "Throw Back Thursday," I am going to post some pictures from "Way Back When."





JACK

RUSSELL

JOSH AND RUSSELL

ANABELLE


RUSSELL'S FIRST DAY HOME

BROTHERS

JACK WITH HIS CHRISTMAS LOOT


Tuesday, April 8, 2014

Insurance and Gel

Josh was sitting on the deck Saturday after the MS walk. He had gotten the mail and was thumbing through the envelopes. I had already checked the mail the day before, but because it was mostly bills, I stuck it back in the mailbox and decided to check on it Monday. Have you ever done that? I am guilty. I usually just stick them back in there to deal with them later. I saw a Med Impact envelope, but I assumed it was about the prior authorization approval for the gel infusions. We received a Fed-ex package on Thursday with all of the medicine information and packing information. It is amazing the amount of marketing these meds have. In fact, you can really tell a lot about the cost of the medicine if you examine the marketing and packaging. Anyways, back to the deck. I watched Josh open the envelope and knew immediately the gel infusions were denied by insurance. I sometimes have this weird 6th sense about things. I knocked on the kitchen window and mouthed, "Is everything okay?" I got the smile that means no, but oh well. I went and got the letter and read for myself that the gel was denied. Ugh...

In my head I just said, "Let's just start the appeal process." Josh and I both agreed to keep it quiet. We had just returned from a fun time raising money and making progress toward a cure. What was the point in bringing this up? In a way, it really felt like post-vacation blues.

We contacted the neurologist Monday, and our nurse had already started the appeal process. WHAT? In the past, we have had to do the appeal and handling the insurance. I am SO thankful that this is taken care of for us. We have also heard that our doctor will personally get on the phone and really work hard to get all of the medicine her patients need. Oh how nice!!

I think all of this just proves that life goes on. March is MS awareness month. There is a ton of buzz about MS and after the month is over, it is almost like Poof! The awareness and buzz disappears. Our company went home on Sunday, and we are back to our routine. School, soccer, gymnastics, show and tell, and the list could go on and on. It would be so easy to sit back and be bummed...to be frustrated...to be fed-up, but what good would it do? Really, it would only make us a victim. I have said from the start that our family will not be victims of this. People always say-well bless your heart. Geez. That is the Southern way of basically saying- well, you're screwed. Really, though, Josh and I pretty much have it made. Just look at all of our blessings and you really wouldn't be able to argue.

As I was loading pictures of the walk, I found this one. Do you know how hard it is to get 3 kids looking at a camera like they want to????


 I mean, how could anyone be down when you have these 3 kiddos? They really make life awesome!



Monday, April 7, 2014

Who Do You Walk For?

Who Do You Walk For? I walk for THIS GUY!
 
Saturday, the MS walk was a little overwhelming. We had about 30 people that walked in honor of Josh. I am pretty sure we were the team with the most strollers, too. The support we received from friends and family was amazing.
Of course, we forgot some things for the lunch afterward, but oh well. We still had a great time with the fellowship of our friends and family.


 
I have decided that Jack is a ninja. Every time I looked up, he was gone. I am very thankful for our cousin, Kristyn. She made it her mission to keep up with him. He was perfectly fine with because she is his favorite:)

I am going to dump some pictures on here from the walk.

Happy Monday! We had a late start to school today due to area flooding. This prompted a story about Noah and the flood from Anabelle this morning. A great reminder that when it rains, it pours, but it eventually stops and the sun shines on!

 My sticker- (Boo in honor of what my students would call their man:)


Uncle Smug's Sticker (Jon Douglas)
KK and Anabelle

 Babies! Babies! Babies!


Jack's transportation- "The Shoulders"

The Team Walking

Jeff and Stella Bogart

 Elizabeth and Stephen Wright Bogart
Jack had to take a detour to potty.


 KK and Jack
 
Grand John's Sticker


 Lining Up to Start Walking
 
 Jeff Bogart (The Bogarts are quite possibly the sweetest, most fun family on the planet)
 
 Katie Grace and I
 

Grand John and Robin (a.k.a. Uncle Bushy)
 

Uncle Bushy's Sticker

Layla


Anabelle's Sticker
Anabelle (My mini me:)

KK

William

Russell and William

Stephen Wright

Jack's Sticker

Josh and Uncle Bushy

Sylvia

Anabelle and Brooklyn hanging out at the tent




Bea's Sticker
 

AND.... This is our Team!!

(Please note my friend Megan holding on to Jack. Seriously- he is a ninja:)